M.E. & CFS Resources for HCP's
Links to guidance, information, CPD's, videos, podcasts and research.
Guidance
NICE Guidance [NG206] | Diagnosis and Management
NICE Guidance [NG206] | Diagnosis and Management
SNOMED CT | M.E. & CFS Codes (Chronic Nervous System Disorder; Energy / Stamina)
SNOMED CT | M.E. & CFS Codes (Chronic Nervous System Disorder; Energy / Stamina)
International Consensus Primer for Medical Practitioners
PDF
·
Document
International Consensus Primer for Medical Practitioners
The National Academics Press | Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness
The National Academics Press | Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness
Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States...
CDC | Information for Healthcare Providers (US)
CDC | Information for Healthcare Providers (US)
site index
Resources - UK
ME MedEd | M.E. & CFS Medical Education (CPD, Journal articles, Videos, Research)
ME MedEd | M.E. & CFS Medical Education (CPD, Journal articles, Videos, Research)
Physio's for M.E. | Educate and Advocate
Physio's for M.E. | Educate and Advocate
Physio's for M.E. | How to work safely with people who have M.E.
Physio's for M.E. | How to work safely with people who have M.E.
The ME Association | Information for Healthcare Professionals
The ME Association | Information for Healthcare Professionals
MEA | Long Covid and ME/CFS – Are they the same?
MEA | Long Covid and ME/CFS – Are they the same?
Doctors with M.E. | Education
Doctors with M.E. | Education
Education - Doctors with M.E.
Physiopedia | Information & Resources (US & UK information)
Physiopedia | Information & Resources (US & UK information)
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)[1] is a complex, chronic, multi-system disease that significantly impairs one’s function and quality of...
#MEAction | Summary of Medical education resources on ME
#MEAction | Summary of Medical education resources on ME
#MEAction | The Clinician's Guide to Pacing and Management (PDF)
#MEAction | The Clinician's Guide to Pacing and Management (PDF)
DHSC Interim Delivery Plan | Use of Language in ME/CFS | My full reality
DHSC Interim Delivery Plan | Use of Language in ME/CFS | My full reality
ME Research UK | What makes ME/CFS so debilitating? (good infographics)
ME Research UK | What makes ME/CFS so debilitating? (good infographics)
Resources - International
Bateman Horne Center | ME/CFS for Healthcare Professionals
Bateman Horne Center | ME/CFS for Healthcare Professionals
Bateman Horne Center | Orthostatic Intolerance: 10 Minute NASA Lean Test
Bateman Horne Center | Orthostatic Intolerance: 10 Minute NASA Lean Test
CDC | Information for Healthcare Providers
CDC | Information for Healthcare Providers
Mayo Clinic | Essentials of Diagnosis & Management (US)
Mayo Clinic | Essentials of Diagnosis & Management (US)
Despite myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affecting millions of people worldwide, many clinicians lack the knowledge to appropriately diagnose or manage ME/CFS. Unfortunately, clinical guidance has been scarce, obsolete, or potentially harmful. Consequently, up to 91% of patients in the United States remain undiagnosed, and those diagnosed often receive inappropriate treatment. These problems are of increasing importance because after acute COVID-19, a significant percentage of people remain ill for many months with an illness similar to ME/CFS.
#MEAction | MEpedia
#MEAction | MEpedia
ME/CFS SA | Continuing Professional Development
ME/CFS SA | Continuing Professional Development
Physiopedia| Differential Diagnosis
PDF
·
Document
Physiopedia| Differential Diagnosis
Workwell Foundation | Resources & Research
Workwell Foundation | Resources & Research
Think GP | Busting the myths and redefining myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
Think GP | Busting the myths and redefining myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
U.S. ME/CFS Clinician Coalition | Resources for Medical Providers
U.S. ME/CFS Clinician Coalition | Resources for Medical Providers
The National Academies Press | Long-Term Health Effects of Covid-19 (includes a chapter discussing overlap with M.E.)
The National Academies Press | Long-Term Health Effects of Covid-19 (includes a chapter discussing overlap with M.E.)
CPD
StudyPRN | M.E. / CFS CPD
StudyPRN | M.E. / CFS CPD
MIMS Learning | 2021 NICE Guidelines
MIMS Learning | 2021 NICE Guidelines
International Resources | Continuing Professional Development
International Resources | Continuing Professional Development
StudyPRN | Short module on Severe ME/CFS
StudyPRN | Short module on Severe ME/CFS
NHS Learning Hub | Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) elearning
NHS Learning Hub | Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) elearning
Videos
Dr Luis Nacul | Treating ME/CFS – State of the Art
Dr Luis Nacul | Treating ME/CFS – State of the Art
OT: The Role of Occupational Therapy in Care for ME/CFS | Amy Mooney
OT: The Role of Occupational Therapy in Care for ME/CFS | Amy Mooney
Dr Charles Shepherd (MEA) | Living with M.E.
Dr Charles Shepherd (MEA) | Living with M.E.
Bateman Horne Center | Series of videos on PEM & management / Video 1 of 7
Bateman Horne Center | Series of videos on PEM & management / Video 1 of 7
Broken Battery | Severe and Very Severe ME/CFS
Broken Battery | Severe and Very Severe ME/CFS
Broken Battery | What is ME/CFS
Broken Battery | What is ME/CFS
Dr Ben Marsh | Fatigue, Pacing and PEM Management | Lessons from ME/CFS
Dr Ben Marsh | Fatigue, Pacing and PEM Management | Lessons from ME/CFS
Dr Kaufman| Diagnosis and Management of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
Dr Kaufman| Diagnosis and Management of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
Podcasts
Dr Nina Muirhead | Learn about M.E.
Dr Nina Muirhead | Learn about M.E.
JOSPT Insights | Ep.77 Less is More - The mindset shift clinicians need for Long Covid, M.E. & other post viral illness
JOSPT Insights | Ep.77 Less is More - The mindset shift clinicians need for Long Covid, M.E. & other post viral illness
JOSPT Insights | Ep. 78 Managing the condition that breaks all the rules - pacing & post-exertional symptom exacerbation
JOSPT Insights | Ep. 78 Managing the condition that breaks all the rules - pacing & post-exertional symptom exacerbation
The POTScast | Understanding Myalgic encephalomyelitis / Chronic Fatigue Syndrome through research & personal experience - Dr Jason
The POTScast | Understanding Myalgic encephalomyelitis / Chronic Fatigue Syndrome through research & personal experience - Dr Jason
Long Covid Podcast | DecodeME - Prof. Chris Ponting & Andy Devereux-Cooke
Long Covid Podcast | DecodeME - Prof. Chris Ponting & Andy Devereux-Cooke
Goodfellow Unit | Dr Cathy Stephenson - Impact of Myalgic Encephalomyelitis/CFS on Young People
Goodfellow Unit | Dr Cathy Stephenson - Impact of Myalgic Encephalomyelitis/CFS on Young People
Dialogues for a neglected illness
Introduction to ME/CFS
Introduction to ME/CFS
Post-Exertional Malaise
Post-Exertional Malaise
Activity and Energy Management - Pacing
Activity and Energy Management - Pacing
Patients' Accounts - Symptoms
Patients' Accounts - Symptoms
Voices from the Shadows
Voices from the Shadows
Severely & Very Severely Affected
Dialogues for a Neglected Illness | Severe & Very Severe ME / CFS
Dialogues for a Neglected Illness | Severe & Very Severe ME / CFS
MDPI | Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
MDPI | Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Children and Young People
Frontiers | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer
Frontiers | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer
The ME Association | Children and Adolescents
The ME Association | Children and Adolescents
MEA | Children and Adolescents: Clinical & Research Guide (PDF)
MEA | Children and Adolescents: Clinical & Research Guide (PDF)
Dr Speight | M.E. in Childhood
PDF
·
Document
Dr Speight | M.E. in Childhood
Research
The ME Association | Published Research
The ME Association | Published Research
The ME Association | Index of Published Research
PDF
·
Document
The ME Association | Index of Published Research
The UK ME/CFS Biobank – CureMe
The UK ME/CFS Biobank – CureMe
DecodeME | The largest ever ME / CFS DNA Study
DecodeME | The largest ever ME / CFS DNA Study
M.E. Research UK
M.E. Research UK
MDPI | Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
MDPI | Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
MDPI | What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults
MDPI | What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults
PMC | European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe
PMC | European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe
Chronic Illness | Experiences of carers of youth, adult children and spouses with ME/CFS
PDF
·
Document
Chronic Illness | Experiences of carers of youth, adult children and spouses with ME/CFS
IOS Press | Impact of Myalgic Encephalomyelitis on treatment of comorbidities: A lived experience
IOS Press | Impact of Myalgic Encephalomyelitis on treatment of comorbidities: A lived experience
MDPI | Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS)
MDPI | Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS)
Plos one | Deconstructing post-exertional malaise in myalgic encephalomyelitis/ chronic fatigue syndrome
Plos one | Deconstructing post-exertional malaise in myalgic encephalomyelitis/ chronic fatigue syndrome
MDPI | Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS
MDPI | Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS
JHP | Geraghty ME-CFS patients' reports of symptom changes following CBT, GET and pacing treatments.pdf
JHP | Geraghty ME-CFS patients' reports of symptom changes following CBT, GET and pacing treatments.pdf
PMC | Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
PMC | Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
Frontiers | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease
Frontiers | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease
Forums & Blogs
Science for ME
Science for ME
Health Rising - Finding Answers for Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)
Health Rising - Finding Answers for Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)
JOSPT | Lessons from Myalgic encephalomyelitis / Chronic Fatigue Syndrome for Long Covid: Post exertional symptom excerbation is an abnormal response to exercise / activity
JOSPT | Lessons from Myalgic encephalomyelitis / Chronic Fatigue Syndrome for Long Covid: Post exertional symptom excerbation is an abnormal response to exercise / activity
JOSPT | Lessons from Myalgic encephalomyelitis / Chronic Fatigue Syndrome for Long Covid Part 2: Physiological characteristics during acute exercise are abnormal in people with post-exertional symptom exacerbation
JOSPT | Lessons from Myalgic encephalomyelitis / Chronic Fatigue Syndrome for Long Covid Part 2: Physiological characteristics during acute exercise are abnormal in people with post-exertional symptom exacerbation
JOSPT | Lessons from Myalgic encephalomyelitis / Chronic Fatigue Syndrome for Long Covid Part 3: "Energy System Aid" for people with post-exertional symptom exacerbation
JOSPT | Lessons from Myalgic encephalomyelitis / Chronic Fatigue Syndrome for Long Covid Part 3: "Energy System Aid" for people with post-exertional symptom exacerbation
JOSPT | Lessons from Myalgic encephalomyelitis / Chronic Fatigue Syndrome for Long Covid Part 4: Heart Rate Monitoring to manage post-exertional symptom exacerbation
JOSPT | Lessons from Myalgic encephalomyelitis / Chronic Fatigue Syndrome for Long Covid Part 4: Heart Rate Monitoring to manage post-exertional symptom exacerbation
More from Linktree
Products
Link in bio + tools
Manage your social media
Grow and engage your audience
Monetize your following
Measure your success
Templates
Marketplace
Learn
Resources
How to use Linktree
Pricing
Link in bio + tools
Link in bio
Customize your Linktree
Link shortener
Create trackable, shareable short links
QR code generator
Turn links into scannable QR codes
Canva Background Editor
Import your custom designs from Canva into your profile
Linktree for every social platform
Grow and engage your audience everywhere
Instagram
TikTok
LinkedIn
X
Manage your social media
Schedule and auto-post
Hands-free, hassle-free social media planning
Instagram auto reply
Automated replies and DMs triggered by comments
AI content & caption generator
Instant AI-powered post ideas and captions
Hashtag generator
Trending hashtag suggestions for better reach
Social integration for every social platform
Plan, auto post, and share across all platforms
Instagram
TikTok
Facebook
Pinterest
LinkedIn
Threads
Youtube
Grow and engage your audience
Collect leads with contact forms
Turn visitors into subscribers
Manage and activate your audience
Organize, tag, and track contacts
Send contacts to email tools
Sync with Mailchimp, Klaviyo, Kit & more
Monetize your following
Earn with a Linktree Shop
Sell products and earn commission
Sell an online course
Create and sell your expertise easily
Host digital products
Sell digital products and build your email list
Earn by hosting sponsored links
Share brand offers and earn for every sign-up or sale
Get rewarded for growing your Linktree
Earn points, level up and unlock cash bonuses
Booked and paid, easily
Offer sessions and earn from your expertise
Measure your success
Social + link analytics
Track clicks, engagement and audience insights
Resources
Read our blog
All the latest tips, tricks and growth strategies
Success Stories
Real people, real results on Linktree
How to use Linktree
Linktree Help Centre
Get answers, guides and support